Accelerating Research
for Rare Diseases
The Cure Rare Foundation is dedicated to funding research, supporting families, and advancing treatments for rare genetic diseases.
Who We Are
Cure Rare Foundation was founded by families directly impacted by rare disease.
We work to bridge the gap between groundbreaking research and the patients who urgently need it—by funding science, advocating for awareness, and supporting collaboration across the medical community.
Gene Therapy, Explained Simply
Most rare diseases are caused by a problem in a gene — the body’s instruction manual.
Gene therapy works by addressing that problem at its source. Instead of only treating symptoms, it aims to repair, replace, or help the body work around faulty genetic instructions.
Our goal is to help families understand the science clearly, honestly, and without unnecessary complexity — because informed families are empowered families.
Why It Matters
Rare diseases affect millions, yet most receive little to no research funding.
Families cannot wait. Science cannot stall. Cure Rare exists to help close that gap—now.
Contact Us
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